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never miss a beat: accessories

Dillon Joy

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The Never Miss a Beat Foundation is a non-profit organization that funds the research to advance the diagnosis, treatment and prevention of congenital heart disease.
The funds raised by NMB go directly to advancing the research and treatment of CHDS at Children’s Hospital of Philadelphia.
I am beyond words, to be apart of not only NMB but also the collaboration of this amazing print!
You’re child doesnt have to have CHD to rock some CHD awareness.
The day before Maverick was born, I was not a CHD parent, I was unaware of how many families CHD affects, I was not concern with spreading CHD awareness. I was completely ignorant to these statistics. I shouldn’t have been, because this is heavy❤️
•Every 15 minutes a child is born with a Congenital Heart Defect.
•CHD’s are the most COMMON cause of infant death due to birth defects.
•About 1 in 4 babies with a CHD have a critical CHD. Infants with critical CHDs generally need surgery or other procedures in their first year of life.
•About 75% of babies born with a critical CHD are expected to survive to one year of age. About 69% of babies born with critical CHDs are expected to survive to 18 years of age.
•People with CHDs face a life-long risk of health problems such as issues with growth and eating, developmental delays, difficulty with exercise, heart rhythm problems, heart failure, sudden cardiac arrest or stroke.
•An approximate 100-200 deaths are due to unrecognized heart disease in newborns each year. These numbers exclude those dying before diagnosis.
•Most causes of CHDs are unknown. Only 15-20% of all CHDs are related to known genetic conditions.
•A baby’s risk of having a CHD is increased by 3 times if the mother, father, or sibling has a CHD.
•Children with CHD are about 50% more likely to receive special education services compared to children without birth defects.
•Fewer than 10% of adults with CHDs in the U.S. who need care from specialty adult CHD centers are receiving this recommended care.